Sunday, June 25, 2017

Belle Update: June 24


Belle has some funny looks. She's there to make sure that we don't take things too seriously.

Laugh. Have fun. Enjoy. 

She's a constant reminder.



She's getting puffy again, but it's been a very slow process. Do you guys notice it? It's so subtle, but it's definitely happening. We've seen this from her before, and it's 100% the sugar medication.

A parent just knows something is going on...

Arabella is getting a few different diuretics to help minimize her water retention, but they can't always keep up. She needs the strong stuff (called Lasix). 



Unfortunately, Arabella can't take too much of the strong stuff. It would eliminate most of her vitamins and minerals, and her bones depend on those vitamins, so it's a game of balance.

Kiera and I are watching her closely, as is everyone else. 

Today her feeds went to 45 minutes (from an hour) and her sugars have still been stable. We noticed she had more reflux issues, though. A shorter feed makes it a bit harder for her to handle, but she does the best she can.



It would be great to wean her from this sugar drug eventually. She's got enough going on, right? But everything will sort itself out.

Belle was lounging most of the day. Hands were up and feet were crossed, like a real boss 😎



She's had a lot more naps over the last few days, and that's always a pleasant sight. We want her resting and growing as much as possible. 

It's nice watching her sleep. It brings a smile to my face. 

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