Each day is such a gift.
Big eyes for momma and dadda 😃
Arabella's air pressure was on the lowest setting today. The staff continue to challenge her, and so far she's doing great.
Tomorrow we should see her on the 'high flow' cannula again. Belle needs to graduate from this CPAP mask, once and for all. Last time she only lasted a day on 'high flow', but to be fair, the Diazoxiode was sabotaging her chances. This time she's almost off the drug, and her breathing has noticeably improved.
Her blood sugars have been stellar. Two more days of good sugars and she'll be off the drug completely. Fingers crossed.
She had some time on her tummy today. She enjoys it for the most part. It's a great workout for this growing girl. Arabella loves to bury her face in the pillow, but the mask gets in the way. The cannula will be a lot more comfortable, if she can learn to tolerate it.
Holding mom's hand. She's such a sweetheart.
Belle received a lot of amazing books from some of you guys. They're a lot of fun, and we keep each one at the hospital. Story time is always a special time.
Arabella was tuckered out by the evening, but she was visibly satisfied. Life is good when we're all together.
Arabella was tuckered out by the evening, but she was visibly satisfied. Life is good when we're all together.
With mom to her left, and dad to her right, she was listening to a story about a tiny snail that eventually saved the life of a great big whale.
Someone so small, rescuing someone so big...it's an interesting tale for all of us, I think 😊
This is the sky,
So vast and high
Sometimes sunny and blue and warm
Sometimes filled with a thunderstorm
She gazed and gazed, amazed by it all
And she said to the whale,
I feel so small...
Hi again,
ReplyDeleteI feel like she has grown so much this past month! It's amazing! She is so beautiful and strong, no wonder you are so proud of her. I keep her in my thoughts everyday and hope you guys can bring her home soon. You three have come a long way. Seems like everything is falling into place, heading to the right path. Hope the new plan works!
Hang in there. And don't forget to rest. Bella needs her parents to be healthy also. =)
Thank you so much! It's amazing to see how far she's come. When we look at pictures from months ago we're speechless sometimes. Every month brings so many changes.
DeleteWe're definitely proud parents. And we're doing our best to stay rested and healthy. It's a tricky balance, but all you can do is give your best and have faith that it all works out.
How is your little girl, by the way? We're sending our love to you and your family
xxxx
Not sure my reply was sent, so here is another one.
DeleteHi!
My daughter is doing good thank you for asking. She was born on May 17th like her mother. :) I even predicted it.
Glad to see the plan is working and she graduated to the big kids department. You guys are taking such good care of her and know when to advocate for her. She's very lucky to have you and Kiera as parents.
Hi,
ReplyDeleteShe is good, thank you for asking. She was born on the 17th. Same as her mom. =)
I am happy to read that she will soon move to the grown ups department. How exciting!
Sending lots of positive thoughts.