Arabella looked swollen to us today. You could see it in her face (especially in her eyes and chin). Do you notice it? It's likely that her PDA is causing some fluid retention.
Doctors are constantly monitoring her total fluid intake, or TFI. Too much fluid may cause problems.
Belle's had so many fluctuating levels lately, but the staff are doing their best to manage everything going on in that tiny body of hers. Today it was her potassium that was low. Her blood sugar dipped again too. Oh, the ups and downs!
Otherwise, she's been quite stable. Some days she struggles a little bit more than usual, but that's expected. Other days she requires a lot more oxygen. There are so many factors and variables constantly at work.
Belle received another blood transfusion today. We heard rumours that she might go in for surgery next week, so in that case it's probably best that the transfusion is out of the way early. We'll get more details by Monday hopefully. Fingers crossed.
Kiera had another chance to hold her this afternoon. This was the scene as they placed little Belle into mommy's arms:
So many dedicated people are there to make sure everything goes smoothly. A respiratory therapist always needs to be present during a transfer like this.
Belle was peaceful and content. She must sense that she's closer to mom and dad.
One day we'll break free from all of the tubes and wires, but in the meantime, there is nothing holding us back from loving our child. Love is love.
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