A better day for Bella.
The nurses placed her on her tummy for the majority of the day since her breathing was still heavier than usual. Laying on her stomach seemed to settle her down, and Belle slept through the entire afternoon and evening.
We didn't have an opportunity to interact with her today, but we're glad she was resting since the last few days have been jam-packed. She's been through a lot of procedures lately.
Baby is all tuckered out.
On Monday there should be another heart echo performed in order to get a better sense of Arabella's PDA. Somehow we doubt that the last round of meds achieved anything. The drugs might even be the reason for her recent struggles with her lungs. It's hard to say for certain.
Sometime mid-week we'll have a formal meeting with the doctor and a few other specialists to go over her x-rays, take a look at all of her fractures, and perhaps talk about a timeline going forward.
It's been 23 days since Belle was first due for surgery, and since then it's been one set-back after another. First it was a sepsis infection, then a fungal infection, and now her bones might be too fragile (PDA surgery requires access through the ribs).
We need this PDA closed more than anything. We're trying to be as patient as possible, but it's not always so easy, since all of her other problems are compounding.
We're afraid that Bella's condition is going to get worse. Each extra day that she's ventilated means more lung damage, for instance. She's at risk for all kinds of other things. Some can be potentially serious and affect her future development, so you can understand why we sometimes feel let down.
As this PDA affair remains unresolved, there is an uneasy feeling that follows us; there is an anxiousness in our minds and hearts. But everyday we do our best to put those feelings behind us, and be thankful for another day spent with her 💗
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