Tuesday, March 21, 2017

Belle Update: Mar 21


Little tinkerbell was resting nicely. In today's picture you can see Kiera's hand as she gives Bella a Q-tip (essentially) that's been dipped in breast milk. She'll suck on it and will often times grab it herself. 

Usually when Arabella is being fed through her tube, we give her these Q-tips so that she associates the actual taste of breast milk with her feed. Baby gets used to the taste of mom's milk along with the feeling of eating, so the link there is made - and it's overall a great way to soothe the baby. 

It's another way that we can bond with her. We can tell that she really enjoys it. 

Belle went down in weight again last night, so she's sitting at 840 grams. I suppose all of the extra water weight she had before is finally out of her system. I'm sure she'll climb back up soon.

Today during the doctors' rounds they spoke about the possibility of giving her another round of drugs for her PDA (if the surgery doesn't happen in the next few days). That really worried us, so we let them know that we can't go through that again. 

Her PDA is massive, and one more round of drugs won't magically close it. I think the doctors know this too, so I'm not sure why they're pushing it. We had such a horrible scare the first two rounds, so Kiera and I are going to push-back on these drugs as much as possible. 

Right now our doctors are in contact with the surgeons at Sick Kids hospital to figure out when this surgery is going to happen. Arabella will have to go across the street to have the operation performed, and she'll stay there post-op for a few days until she recovers. Apparently their pediatric surgeons are amazing. 

We're praying and hoping for the best.

1 comment:

  1. I was actually surprised she didnt go to sick kids in the first place after birth, being so premature. But let me tell you, i had a very rough time when kenz was a baby and sick kids where the only hospital that knew what was wrong with her and had her fixed up in no time. There was no messing around. And even though the nurses were care for a couple different kids all at once, they always made me feel like kenz was #1 in priority. It was such an amazing experience.

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