Monday, March 20, 2017

Belle Update: Mar 20


Miss.Arabella is doing much better today. She's recovering from a long and busy day yesterday.

Rest up, little one. 

They were doing a heart echo on her this morning when we arrived. They keep checking up on that artery to see if there's any progress, but the murmur is still very loud. There's almost no way around it. Surgery might happen in the next few weeks, we will just wait and see.

We really miss holding Belle. I wish I could comfort her (and comfort myself too). It's a helpless feeling.

But this ventilator is giving her a break, so we'll allow her to regain her strength and give her some space. It's too difficult to bring her out of the incubator given what's going on right now. The tube in her windpipe makes things tricky too, and we don't want Belle to be in any discomfort, especially when we're holding her. 

Last night she weighed 870 grams. A slight dip down, but she'll come back in the next few days. Her feeds are steady at 11ml every two hours, and everyday they'll go up an extra 1ml as long as she continues to tolerate them. 

Another good thing is that she no longer needs a PICC line (an IV that supplies her with extra vitamins and nutrients). Now she gets everything she needs mixed in with her breast milk (since she's been tolerating her feeds so well).

Way to go Bella. She's stable, and she's on the up. 

As nice as it is to celebrate the milestones, we know we have such a long way to go. There is still so much uncertainty ahead of us.

When we look back, however, it's amazing to see how far we've traveled. Day by day, we sometimes feel lost. That's because we keep looking at the ground in front of us and it feels like we're not getting anywhere. 

All it takes is a little perspective. 

Look at where you started from, and look how far you've come.

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