It looks like Arabella does indeed have a fungal infection in her blood. More than likely, she'll be on antibiotics for the next two weeks. It will take time to eradicate this infection, so until then surgery is on hold.
Our patience and strength are being tested.
Thankfully she's going to stay at Sick Kids until everything is sorted out. The trips back and forth seem to only create issues for her, and each hospital has a slightly different way of doing things. They each take blood from her, to the point where she eventually needs a transfusion. The more pricks and IV lines she receives, the more chances of infection too. It's a vicious cycle we can't seem to break.
They had to hold her feeds, so Belle has only gotten electrolytes lately. She was 980 grams the night they transferred her over (so close to the 'kilo club'!).
The thought of her not being fed right now kind of hurts. You can tell she's drained too. I haven't seen her open her eyes for the last few days, and there's no chance of holding her either. We just talk to her through the incubator.
"Stay strong babe, mommy and daddy are right here."
I had to leave the room at one point yesterday. I simply couldn't handle the frustration I felt.
Today it was Kiera's turn. At least we alternate š
Someone is always the stronger one. We each have our moments, but we bounce back fairly quickly. Sometimes you just need to go for a walk. Take a time-out and regroup.
They've been giving Belle a low-dose fentanyl drip to control her pain and calm her down. She has become very agitated lately, so it prevents her from fighting the ventilator tube that helps her breathe.
I feel so sorry for this little girl. It breaks my heart when I hear the nurses tell me all the things that have happened while we were away.
All in all, today was still a better day than yesterday.
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